Up until now all the blog posts have been Will's. But last week, I felt the need to write my feelings and so I made my first ever blog post.I had a dream last night. In the dream Liam was in our bed playing with us - as he likes to do. He jumped off the bed and started marching around the room; holding a stick - like a baton- in his hand. He was taking his first steps and loving it.We even had the camera right there and were able to take a picture of him (I should have known it was a dream at that point). I was so excited… then I woke up.It seemed so real to me.
I am so anxious for him to walk.I want him to walk by his second birthday.Maybe because it is just a recognizable milestone, but probably because the average age for walking for a down syndrome child is 24 months, and I don’t want him to be behind even down syndrome children.
It had been a tough day.We had a meeting with the school system to determine his eligibility for school next year.Over the past two months we have had many evaluations… physical therapy, medical, psychological, social/cultural, speech therapy, and an evaluation from a teacher.In this meeting we got the results of all the tests.He scored very low on all the tests; basically between 5 months and 15 months developmental age. It probably averaged about 11-12 months.We knew this, even before going to the meeting, but it is still hard.I am not sure I believe the 5 months. That would be like Charles (he turned 4 months old this week).I cannot think of anything that Charles is doing or about to do that Liam doesn't do already..
I am not sure what Liam should be doing at this point.Should he be dressing himself? That was one of the testing areas. I have 5 Facebook friends/family that have children within about two - three months older or younger than Liam.I get to see a little in their posts what the "typical" two year old is doing.Sometimes it makes me sad.People say don't worry he will do those things - he will walk.I know that.However, I am anxious for it to happen (not only so I won't always have to carry two children everywhere.)Also, I know that it will get to a point that he will not go further.When will that happen?I don't know.What developmental age will he be stuck at - 10?Younger? Older?I don't know.